How neurodivergent households design ‘a home that knows your brain’ (11-Dec-25)
From dark, sound-proofed rooms to clever storage solutions, families with autism and ADHD are finding inspired ways to adjust their environments. Link
Inclusive Christmas Guide from Autistica (11-Dec-25)
To help make the festive season more inclusive, Autistica has co-designed a practical All is Calm: Inclusive Christmas Guide with autistic people. Link
Streeting orders review of mental health diagnoses as benefit claims soar (9-Dec-25)
Health secretary has asked experts to investigate whether normal feelings have become ‘over-pathologised’. Link
Scientists say using space tech to detect autism is child’s play (9-Dec-25)
A pioneering interdisciplinary study has shown that how young children play a simple iPad game could support early identification of autism. Link
New research shows the proportion of adults with autism stable (9-Dec-25)
Results from the latest part of a national survey on mental health reveal the proportion of adults with autism and psychotic disorders in England has not risen since data was first collected in 2007. Link
Autism Is Not a Single Condition and Has No Single Cause (9-Dec-25)
Research reveals that those diagnosed with autism early show distinct genetic and developmental profiles from those diagnosed later. Link
UCL academic to lead review into mental health, autism and ADHD services (9-Dec-25)
An independent review launched by the UK’s health secretary and led by a UCL academic will examine how England’s health system currently delivers mental health, autism and ADHD services in order to help ensure children and adults can get the right support. Link
Timms review of PIP (19-Nov-25)
The Timms review of PIP has launched a call for people to join the steering group they are establishing, providing direction, leadership and decision-making. They’re looking for people with lived experience who are also part of representative/disabled people’s organisations. Link
Systematic reviews of the link between paracetamol use and autism. (19-Nov-25)
An international research team led by the University of Liverpool published an umbrella review of systematic reviews of the link between paracetamol use and autism. This work was fast tracked in response to the recent misinformation from Trump/Kennedy and confirms that existing evidence does not support a link. Link
ADHD Taskforce Published its Final Report (19-Nov-25)
Last week the ADHD Taskforce published its final report. The main recommendations of the report helpfully mirror our focus on systemic change, early support and responding to need, and there is potential for alignment with our positive vision/narrative on a needs-led system. There is also aligned messaging on levels of diagnosis. Link
Improving Autism Detection with Multimodal Behavioral Analysis (16-Nov-25)
Due to the complex and resource-intensive nature of diagnosing Autism Spectrum Condition (ASC), several computer-aided diagnostic support methods have been proposed to detect autism by analyzing behavioral cues in patient video data. While these models show promising results on some datasets, they struggle with poor gaze feature performance and lack of real-world generalizability. Link
Autism Is Not One Disorder, New Data Show (16-Nov-25)
Autism diagnosed in early childhood differs genetically and developmentally from autism identified later in an individual’s development, challenging the notion that it is a single, uniform disorder, new research suggests. Link
National mental health programme for autistic pupils extended to 2028 (16-Nov-25)
A pioneering programme designed to help autistic young people improve their mental health and understand themselves better has been extended for a further three years, after positively impacting thousands of pupils since its launch. Link
Autism assessment waiting times November 2025 (16-Nov-25)
As of September 2025, there were 227,813 patients with an open referral for suspected autism, latest NHS data has revealed. Link
New zine exploring autistic autonomy and why it matters (14-Nov-25)
Professor Liz Pellicano, University College London, led the work, asking Autistic* people about their experiences and why making choices about their lives mattered to them. The team then gathered these stories into a digital zine. Link
Increased prosocial value orientation in autistic adults (31-Oct-25)
Sharing and giving to others are important for our social relationships. Previous studies show that when given opportunities to share money, autistic and non-autistic people give the same amount of money to people they feel close to, like their friends. However, compared with non-autistic people, autistic people give more money to people they feel less close to, like strangers. In this study, we replicated this finding. Link
Research finds crisis in service provision for autistic people (23-Oct-25)
On 23rd April 2025 researchers from the Autism Research Centre (ARC) at the University of Cambridge presented their findings from studies into service access experiences and priorities for change for autistic people, at a high-profile event held at the European Parliament in Brussels. Link
Around 90% of autistic adults over 40 are undiagnosed in UK (23-Oct-25)
Some 89 to 97 per cent of autistic adults aged over the age of 40 are undiagnosed in the United Kingdom, the largest report of its kind has found. Link
Global prevalence of autism hits over 60 million (23-Oct-25)
New data shows that the global prevalence of autism in 2021 was over 60 million people, and autism was one of the top ten causes of non-fatal health burden for people aged under 20 years. Link
What is a Body Focused Repetative Behaviour & do you experience them? (23-Oct-25)
For some of us, the line between stimming, an act of self-regulation, and a BFRB is blurry. Both are repetitive actions, with the same core drive: to regulate a dysregulated nervous system. BFRBs become classified when the behavior crosses over into causing noticeable physical harm. Link
Changing attitudes to autism through photography (3-Oct-25)
Autistic children and young people from south Wales have created a photography exhibition to try and change negative attitudes. Link
New review highlights need for menopause support for autistic people (3-Oct-25)
A new evidence review undertaken by Swansea University academics to better understand the menopause-related experiences and needs of Autistic people, has revealed significant gaps in knowledge, support, and healthcare provision, and identifies a need for targeted resources and interventions. Link
New project using Extended Reality to help autistic drivers (3-Oct-25)
A new project is using Extended Reality (XR) technologies to develop tools which could help autistic people overcome some of the barriers and difficulties faced when driving a car. Link
Understanding eye care access for autistic adults ..... (2-Oct-25)
A convergent mixed-methods study. Autistic people face persistent barriers to accessing healthcare, yet little is known about their experiences receiving eye care, despite elevated rates of vision conditions. Link
Constantly overwhelmed and desperate for help (26-Sep-25)
Parents’ experiences of supporting their autistic child with mental health difficulties in the United Kingdom. Link
6 Common Triggers for Shutdowns & Meltdowns (20-Sep-25)
Sometimes a day can go from completely fine to completely overwhelming in a split second - and then, a shutdown or meltdown happens. These moments can happen from one very specific thing and they can also be a result of a combination of things that have been building up - either over a prolonged or short period of time. Chelsea from The Autism Support Group has prepared an article that lists some of the common triggers and strains. Link
30+ ways to to beat under-stimulation (13-Sep-25)
Ever find yourself feeling restless, unmotivated, agitated and maybe even a bit… bored? Pals, that might be understimulation and it’s pretty much the opposite of the overwhelming overstimulation many of us experience. Instead of having too much sensory or cognitive input, you're not getting enough and, as a result, your brilliant brain is craving some stimulation! Link
9 reasons you rehearse conversations - It's called scripting (1-Sep-25)
Why are transitions a challenge for autistic people? We thrive with predictability & routine: changes to this can be disruptive & create anxiety. Sensory processing differences: going from one type of input (hot to chilly rooms or quiet to noises spaces) can be uncomfortable and experiencing a new sensation can be overwhelming. Executive dysfunction: this makes it hard to anticipation and plan for transitions. Link
Navigating work challenges: bullying, discrimination & adjustments (1-Sep-25)
Workplace challenges are incredibly common for autistic people. If we’re not being misunderstood by managers and colleagues and taking sensory breaks in the toilet then we’re burning ourselves out masking while fighting our corner to try and get the accommodations we need. Link
Hidden Barriers: a new documentary service (30-Aug-25)
Filmmakers are putting together a series of documentaries for the North East Autism Society to shine a light on the challenges that autistic and neurodivergent people face in their daily lives. From airports to buses, banks to hospitals, organisations can inadvertently put up barriers that can prevent autistic people accessing their services. Link
Older autistic people need more help after years of misdiagnosis (29-Aug-25)
Researchers have called for better support for middle-aged and older autistic people after a review found that 90% of autistic people aged over 50 in Britain are either undiagnosed or misdiagnosed. Link
Upsetting experiences (23-Aug-25)
Upsetting experiences in the lives of neurodivergent young people: A qualitative analysis of accounts of adolescents diagnosed with attention-deficit/hyperactivity disorder and/or autism. Link
Rethinking Exercise: Autistic Adults’ Physical Activity Experience (21-Aug-25)
Durham University researchers explored how autistic adults (aged 36–59) experience physical activity. They found that low participation often stems from societal assumptions and sensory or social anxieties—not lack of interest. The study advocates co-produced, trauma-informed, neuro-affirming exercise approaches. Link
Autism Not Linked to Increased Age-Related Cognitive Decline (21-Aug-25)
A new longitudinal study from UCL (published in The Gerontologist) tracked spatial working memory in over 10,000 UK adults aged 50+ over seven years. Findings show that autistic traits do not correlate with faster cognitive decline compared to neurotypical peers—offering reassurance around ageing and memory in autistic adults. Link
Companies misleading parents over "milk teeth" autism treatments (21-Aug-25)
A new investigation published in the BMJ reveals that UK companies — including BioEden, Future Health Biobank, and Stem Protect — are marketing services to collect milk-teeth stem cells for future treatments of autism and diabetes, charging around £1,900 plus annual fees. Medical experts warn these claims are unproven, and Tim Nicholls of the National Autistic Society emphasizes: “autism is not a disease and cannot be cured.” Link
“Too much going on”: Autistic adults overwhelmed by non-verbal social cues (19-Jul-25)
Autistic adults have shared the challenges and misunderstandings they face when communicating with body language, facial expressions and tone of voice. Link
Four autism subtypes map onto distinct genes, traits (19-Jul-25)
An analysis of more than 5,000 autistic children and their siblings underscores the idea that autism can be understood as multiple conditions with distinct trajectories. Link
School for children with autism put on hold (19-Jul-25)
A new school planned for autistic children has been put on hold by the DfE while to government looks at the SEN rules. Link
I’m worried my autistic son is going to struggle socially in his new school (19-Jul-25)
A parent seeks help with concerns about their autistic son who is moving to secondary school. Link
Charity warns against generalising about autistic people (19-Jul-25)
The UK’s leading charity for autism has said it is important not to generalise about the condition in the wake of comments made by Gregg Wallace in which he appeared to link the allegations of misconduct made against him to his own diagnosis. Link
Camouflaging in autism: A cause or a consequence of mental health difficult (11-Jul-25)
Camouflaging ([un]consciously hiding one’s autism traits) is hypothesized to be an underlying mechanism explaining elevated levels of mental health difficulties in autistic adults. As previous studies investigating this relationship were all cross-sectional, the direction of this association remains unclear. Therefore, we investigated whether (1) camouflaging predicts a change in mental health difficulties and (2) mental health difficulties predict a change in camouflaging. Link
UK reviewers flag autism profiling in Prevent programme (23-Jun-25)
Rights & Security International (RSI) is challenging the UK government, claiming that neurodivergent individuals—including many autistic people—are being over-represented in Prevent and Channel de-radicalisation schemes, potentially breaching equality laws. Link
Global autism therapy framework launched from India (18-Jun-25)
India has introduced a pioneering autism therapy framework aimed at supporting 900 million families, now rolling out internationally. It emphasises scalable and evidence-based approaches for autism support across diverse settings. Link
New performing‑arts space for autistic people opens in Berkshire (18-Jun-25)
Prior’s Court autism charity has opened the Piper Arts Centre—England’s first performing-arts venue designed specifically for autistic individuals. The centre's launch celebration showcased performances and creative opportunities in an inclusive, sensory-friendly environment. Link
Ofsted criticised for linking autism to risk of extremism (18-Jun-25)
Ofsted's latest training manual suggests autistic children may be more vulnerable to radicalisation due to intense interests and social isolation. This guidance has sparked criticism from the National Autistic Society and human rights groups, warning it could reinforce stigma and lead to discriminatory profiling. Link
A Robot-Assisted Approach to Small Talk Training for Adults with ASD (18-Jun-25)
An exciting arXiv study, from late May 2025, evaluates a robot-based system helping autistic adults practice small-talk. Users reported increased conversational confidence and eye contact—suggesting new tech-led tools for social skills enhancement. Link
Federal autism commission debate (18-Jun-25)
Though US-focused, this article reflects global discussions on autism science, underlining the importance of science‑based strategies and keeping abreast of research trends. Link
Majority may now identify as neurodivergent (17-Jun-25)
This article features insights from Professor Francesca Happé (King’s College London), highlighting how reduced stigma around autism, ADHD, dyslexia, and dyspraxia has led many UK adults to self-identify as neurodivergent—potentially outnumbering those who identify as neurotypical. Link
Making public transport accessible (28-May-25)
Autistica has released a report that highlights the challenges faced by neurodivergent people when using public transport. The report makes 11 recommendations, grouped into five areas for change to create more neuroinclusive transport, under the headings: - Driving change through research and collaboration - Integrate and simplify - Maximising digital technology - Understanding neurodivergence - Less crowded, more support. You can read the whole report here: Link
Advancing Autism Conference 2025 (20-May-25)
Due to the success of last year’s Advancing Autism Conference they will be doing it all again this year on Wednesday 9th July. To find out more follow this Link
Molehill Mountain (16-May-25)
Molehill Mountain is an app to help autistic people understand and self-manage anxiety. You can use Molehill Mountain to explore the causes and symptoms of anxiety. Link
Developing best practice for autism referral (16-May-25)
NHS England commissioned Autistica to evaluate the diagnostic screening instruments for autism. Using the right screening and triage tools could help reduce waiting times for NHS autism assessment services and make these services more efficient. Link
Newly diagnosed autistic adults (8-May-25)
“I’m not feeling alone in my experiences”: How newly diagnosed autistic adults engage with a neurodiversity-affirming “Welcome Pack”. Receiving an autism diagnosis in adulthood can be profoundly transformative, yet many newly diagnosed autistic adults experience a lack of accessible, affirming post-diagnostic support. This study explores how a self-guided, neurodiversity-affirming resource—the “Welcome Pack”—supports newly diagnosed autistic adults in navigating their evolving identity. Using a qualitative approach, we recruited 11 autistic adults without intellectual disability in Australia who had received a diagnosis within the past 6 months. Link
‘We’re quite good at thinking outside the box: (8-May-25)
We’re quite good at thinking outside the box: Early autistic sensory experiences expressed by autistic adults and caregivers of autistic children. Sensory differences are well documented in autistic individuals. However, early sensory experiences have not been fully explored, particularly from the perspective of autistic people. We sought to understand early sensory experiences in autism from the perspective of autistic adults (some of whom also had autistic children) and caregivers of autistic children (some of whom also had a personal autism diagnosis). Link
Autism in the context of joint hypermobility (14-Apr-25)
Autism in the context of joint hypermobility, hypermobility spectrum disorders, and Ehlers–Danlos syndromes: A systematic review and prevalence meta-analyses. Increasing research suggests a link between autism spectrum disorders and joint hypermobility, hypermobility spectrum disorders, and Ehlers–Danlos syndromes. However, no study systematically examined the available literature about the relationship between these conditions. A systematic literature search was conducted to identify studies . Link
Alexithymia (14-Apr-25)
Alexithymia may explain the genetic relationship between autism and sensory sensitivity. Sensory symptoms are highly prevalent amongst autistic individuals and are now considered in the diagnostic criteria. Whilst evidence suggests a genetic relationship between autism and sensory symptoms, sensory symptoms are neither universal within autism nor unique to autism. One explanation for the heterogeneity within autism and commonality across conditions with respect to sensory symptoms, is that it is alexithymia (a condition associated with difficulties identifying and describing one’s own emotions) that has a genetic relationship with sensory symptoms, and that alexithymia commonly co-occurs with autism and with several other conditions. Link
Awareness? Acceptance? Appreciation. (9-Apr-25)
In acknowledgement of World Autism Awareness Day 2025, Lizzie Smith, Neurodiverse Connection’s Communications Lead, explores what awareness, acceptance and appreciation of Autism would actually look like. Link
World Autism Acceptance Day (6-Apr-25)
To mark World Autism Acceptance Day, the House of Lords Committee on the Autism Act 2009 is today launching its Call for Evidence inviting written contributions to its inquiry. Link
Autism Myths (3-Apr-25)
Awareness of autism is growing, but there is still a lot of confusion around what autism is, what causes it and how it affects people in very different ways. Link
The use of multisensory environments (31-Mar-25)
The use of multisensory environments in children and adults with autism spectrum disorder: A systematic review. Multisensory environment is a setting designed with activities and tools that offered sensory stimulation. Despite their widespread use, no evidence-based guidelines are currently available. The aim of this systematic review was to assess the impact of multisensory environment interventions in autism and to provide guidelines. Link
Food selectivity (12-Mar-25)
Food selectivity and eating difficulties in adults with autism and/or ADHD. Children with autism or attention-deficit/hyperactivity disorder (ADHD) are more likely than neurotypical children to experience eating difficulties, such as picky/selective eating, slow eating, and over/under-eating. Recent studies show that eating difficulties can persist into adulthood for autistic individuals. Yet little is known about the mechanisms involved and whether adults with ADHD also experience such challenges. Link
Rapport in same and mixed neurotype groups ...... (26-Feb-25)
Rapport in same and mixed neurotype groups of autistic and non-autistic adults. Although autistic adults may establish better dyadic rapport with autistic relative to non-autistic partners, it is unclear whether this extends to group settings. The current study examined whether rapport differs between autistic groups, non-autistic groups, and mixed groups of autistic and non-autistic adults, and whether differing diagnostically from the rest of the group results in lower rapport. Link
A strengths-based understanding of the play..... (17-Feb-25)
‘Like it’s making my heart run’: A strengths-based understanding of the play of autistic children. Play is a central feature of childhood and a fundamental right of all children. Currently, our understanding of autistic play is based on a deficit perspective, most often framed in comparison to neurotypical ‘norms’ and assumptions where the views of the players themselves have been overlooked. In moving towards a strengths-based neuroaffirmative understanding of autistic play, this study consulted with 19 autistic children (aged 5 to 13 years) using a series of semi-structured interviews and a range of creative and participatory methods. Link
Personality tests for retail roles (11-Feb-25)
A Big Issue investigation has found some of the UK’s most recognised companies still using personality tests for retail roles, including Morrison’s and John Lewis. They stood in contrast to companies who said they were actively avoiding the tests over fears of the impact on neurodivergent applicants. Link
Autism Terminology (8-Feb-25)
Autism Terminology Preferences Among Autistic and Non-Autistic Adults in North America. There is widespread debate about the language used to describe autistic people; many professionals prefer person-first language (e.g., “person with autism”), and many autistic people prefer identity-first language (e.g., “autistic person”). Link
How To Make Therapy Better (29-Jan-25)
How can we make therapy better fo.r autistic adults? Autistic adults’ ratings of helpfulness of adaptations to therapy. Autistic people are at elevated risk of mental health conditions and experience significant barriers to effective support. While adaptations to therapy for autistic people have been proposed by clinicians, there is limited research on how helpful autistic people themselves rate these. We aimed to address this gap. Link
Theory of mind (15-Jan-25)
The theory of mind hypothesis of autism: A critical evaluation of the status quo. For several years the Theory of Mind (ToM) hypothesis has been suggested as an underlying mechanism for understanding autism. This paper suggests that no existing Theory of Mind ideas fully explain ToM in autism. So, the team introduce the Mind-space framework. Link
Autism Alert Cards (19-Dec-24)
‘Just knowing it’s there gives me comfort’: Exploring the benefits and challenges of autism alert cards This study explores the experiences and outcomes associated with the use of an autism alert card, developed to assist with the complexities of autism disclosure. Link
Relationships (5-Dec-24)
Rejection Sensitive Dysphoria, Relationships, and How to Overcome Challenges by Megan Anna Neff. Link
Pathological demand avoidance. (28-Nov-24)
Pathological demand avoidance, autism, & ADHD. By Dr. Debra Bercovici PhD In this article, we will explore what pathological demand avoidance (PDA) is—often referred to as Persistent Drive/Desire for Autonomy (PDA) by autistic people—and some reasons PDA may occur. Link
Visiting University Open Days (30-Oct-24)
Visiting University Open Days with Neurodivergent Young People very useful questions to ask. Link
Map of Monotropic Experiences (25-Oct-24)
Monotropism seeks to explain autism in terms of attention distribution and interests. Link
Benefits and challenges of autism alert cards (25-Oct-24)
‘Just knowing it’s there gives me comfort’: Exploring the benefits and challenges of autism alert cards. This study explores the experiences and outcomes associated with the use of an autism alert card, developed to assist with the complexities of autism disclosure. Link
Psychological strengths and well-being (9-Oct-24)
Psychological strengths and well-being: Strengths use predicts quality of life, well-being and mental health in autism. Link
Autistic MI5 officer: Keeping secrets no problem (2-Oct-24)
The BBC has been given rare access inside MI5’s headquarters in London to meet a senior intelligence officer who shares what it was like to discover he was neurodivergent. Link
ADHD How many? (18-Sep-24)
How many of us will end up being diagnosed with ADHD? Link
Understanding autistic youths (2-Sep-24)
Understanding autistic youths’ menstrual product preferences and caregivers’ product choices. Link
Transition (13-Aug-24)
Same Transition, Different Perspectives: Comparing Dyadic Interviews with Autistic Young Adults and Parents. Link
Adapting communication (2-Aug-24)
Adapting communication with autistic service users: Co-produced adaptations for medical services, employers, and the third sector. Autistic people have a greater need to access services (e.g., health and social care, welfare, justice, etc.), yet face significant disadvantages when doing so, often due to poor two-way communication between service providers and service users. This study aimed to co-develop practical, evidence-based adaptations to facilitate communication between service providers and autistic people. Link
Autistic Adolescents with Co-Occurring Anxiety (24-Jul-24)
Psychological Interventions for Autistic Adolescents with Co-Occurring Anxiety and Depression: Considerations Linked to Autism Social Identity and Masking. Link
Utterly Overwhelming (17-Jul-24)
“Utterly Overwhelming”—A Mixed-Methods Exploration of Sensory Processing Differences and Mental Health Experiences in Middle-Aged and Older Autistic Adults. Link
Diagnoses with a stool sample (11-Jul-24)
Autism could be diagnosed with stool sample, Scientist say. Link
Game Changer (8-Jul-24)
Game Changer: Exploring the Role of Board Games in the Lives of Autistic People: This mixed methods paper reports findings from three studies examining the overlap between autism and hobbyist board gaming. Link
NEST Toolkit (24-Jun-24)
NEST (NEurodivergent peer Support Toolkit) is a suite of materials to facilitate peer support for neurodivergent young people in mainstream secondary schools. The toolkit has been co-created by researchers at the University of Edinburgh, neurodivergent young people and a neurodiverse group of adults who work with neurodivergent young people. Link
Autism in Black Girls (14-Jun-24)
Blog by Warda Farah from Autistic Girls Network on Autism in Black Girls. Link
A certain magic (5-Jun-24)
‘A certain magic’ – autistic adults’ experiences of interacting with other autistic people and its relation to Quality of Life: A systematic review and thematic meta-synthesis. There is an increasing focus on research exploring autistic communication and community. In this review, we systematically collate and analyze how autistic adults describe their experiences of other autistic people and the relationship this has with their Quality of Life (QoL). Link
Misdiagnosis of psychiatric conditions (27-May-24)
Perceived misdiagnosis of psychiatric conditions in autistic adults: Many autistic people, particularly women, do not receive an autism diagnosis until adulthood, delaying their access to timely support and clinical care. One possible explanation is that autistic traits may initially be misinterpreted as symptoms of other psychiatric conditions, leading some individuals to experience misdiagnosis of other psychiatric conditions prior to their autism diagnosis. However, little is currently known about the frequency and nature of psychiatric misdiagnoses in autistic adults. Link
Im Schwarzwald (17-May-24)
One of our members, Matthew Wren, has composed an orchestral musical piece which was performed by the Budapest Scoring Orchestra, conducted by Péter Illényi. Don't miss the chance to listen to and buy this soaring and evocative music. Link
Autism & OCD (16-May-24)
Autism is the Arena and OCD is the Lion’: Autistic adults’ experiences of co-occurring obsessive-compulsive disorder and repetitive restricted behaviors and interests. Link
Health Conditions & Autism (8-May-24)
Diagnosis of common health conditions among autistic adults in the UK: evidence from a matched cohort study. Link
Black Mental Health and Wellbeing Alliance (30-Apr-24)
The Black Mental Health and Wellbeing Alliance is a collective of individuals with lived experience and grassroots organisations in the mental health sector, with a primary focus on tackling racial inequalities that disproportionately impact Black people. You can read their manifesto here: Link
PIP consultation (30-Apr-24)
The Government are planning to make changes to PIP payments. This is your opportunity to have your say. Link Link
Supermarkets help autistic people (28-Apr-24)
The University of Reading has launched a guide offering six principles to make shopping more autism-friendly, such as reducing background music and providing designated quiet areas. Link
Autism misdiagnoses (25-Apr-24)
Autism – The tragedy of the missed and misdiagnosed. Interesting blog Link
Misdiagnosis Monday: ADHD vs Autism (25-Apr-24)
Understanding of the genetic and phenotypic (characteristic expression) overlap of ADHD/Autism is relatively new. Until recently, if a patient presented with symptoms of both conditions, the clinician had to choose which diagnosis fits best. Read more ... Link
Daily activities of autistic adults (23-Apr-24)
It is crucial to arrive at a comprehensive understanding of the types of daily activities autistic adults typically engage in. However, previous research has almost exclusively focused on vocational or education activities. Read more ... Link
Autistic experiences of menopause and midlife (20-Apr-24)
Previous research indicates that menopause can be an extremely difficult transition for some autistic people. This study asks how autistic people experience menopause and how they can better access services, support and information. Read more ... Link
Autism & Hoarding (12-Apr-24)
Hoarding is a psychological condition affecting 2% of the world’s population.[1] Hoarding is characterized by having an intense need to hold onto one’s possessions and being unable to determine how those items are useful in relation to yourself. Read more ... Link
MPs debate Personal Independence Payment (11-Apr-24)
MPs held a debate on Personal Independence Payment and other disability benefits on Tuesday 26 March in Westminster Hall. The debate was led by Tanmanjeet Singh Dhesi MP. You can watch the debate here: Link or you can read the transcript here: Link
Position Statement on ABA (10-Apr-24)
The European Council of Autistic People is an umbrella organisation for autistic-led national and regional organisations in Europe. Position Statement on the use of Applied Behavior Analysis and related behavioral methods in the context of treatment, therapy, habilitation or education for autistic people Link
Autistic adults misdiagnosed with psychiatric (5-Apr-24)
Perceived misdiagnosis of psychiatric conditions in autistic adults. New Paper: 1-4 autistic adults (1-3 autistic women) reported at least one psychiatric diagnosis, prior to being diagnosed with autism, that was perceived as a misdiagnosis. Link
Relationship Guide (5-Apr-24)
Helping autistic people recognize unhealthy relationships. Link
Six ideas how to address the autism mental health (4-Apr-24)
Six ideas about how to address the autism mental health crisis. The autism mental health crisis can be described with the following paradox: autistic people have a high chance of developing mental health problems but a low chance of receiving effective help. In this editorial, The authors outline the mental health challenges that autistic people experience under current systems of care and share some ideas about how clinicians, researchers and members of the autism community can work together to address this situation. Link
NHS faces avalanche of demand for autism services (4-Apr-24)
Nuffield Trust says system for treatment is ‘obsolete’ as number of patients in England awaiting assessment hits record high Link
Vacancy (25-Mar-24)
Fee-paid Disability Qualified Tribunal Member of the First-tier Tribunal, Social Entitlement Chamber (Social Security and Child Support Tribunal). Link
Disability & Neurodiversity (25-Mar-24)
The Best Universities For Disability & Neurodiversity Link
Neurodiversity concept was developed collectively (13-Mar-24)
The neurodiversity concept was developed collectively: An overdue correction on the origins of neurodiversity theory: An international group of autistic scholars of autism and neurodiversity, discuss recent findings on the origins of the concept and theorizing of neurodiversity. Link
Serious Games for Developing Social Skills (13-Mar-24)
Serious Games for Developing Social Skills in Children and Adolescents with Autism Spectrum Disorder: A Systematic Review: Link
Autism Through Cinema (8-Mar-24)
Autism Through Cinema was a five-year collaborative investigation into the relationships between neurodivergent thinking and cinematic creation. Link
The Autistix (5-Mar-24)
How many of you are familiar with a band called The Autistix. They are a rock band from London formed in 2010 whose sound is unique, as well as having two band members with autism. You can find our more (and listen to their music) on their website Link
British Sign Language (BSL) Cafes (5-Mar-24)
One of our members who is deaf has set up events in Aylesbury and Beaconsfield for those interested in improving their BSL skills to meet new people in a relaxed and welcoming environment. More information here Link and here Link
Radical differences in Autism Diagnosis (5-Mar-24)
Landmark research suggests people have an 85% chance of positive assessment at some centres in England and 35% in others. Take a look at this Guardian article: Link
The Buckland Review of Autism Employment: (29-Feb-24)
The Buckland Review of Autism Employment: report and recommendations Link
What are the autism research priorities of autisti (10-Feb-24)
Studies investigating autistic community research priorities indicate a mismatch between what autism research focuses on and what autistic people want to see researched. Furthermore, there has not been a research priority-setting exercise specifically with autistic people in Scotland, where there are unique cultural, political and social contexts. Link
Borderline Personality (8-Feb-24)
Borderline Personality as a Factor in Late, Missed, and Mis-Diagnosis in Autistic Girls and Women: A Conceptual Analysis. For autistic girls and women, the journey to an autism diagnosis may include one or more misdiagnoses. Misdiagnosis with borderline personality disorder (BPD) or borderline traits may be particularly common, and characteristics often observed in autistic girls and women may contribute specifically to a risk of misdiagnosis with BPD. This review draws from a burgeoning literature on autism in girls and women to provide a detailed discussion of differential diagnosis of BPD and autism in cisgender girls/women, with a focus on phenotypic traits and/or their presentation that may be more common in autistic girls/women and that may be particularly prone to miscategorization as BPD. Distinctions between autism and BPD are identified, emphasizing the need for scrutiny of an individual's clinical presentation to tease apart differences between the autism and BPD phenotypes. Link
Autism spectrum disorder diagnosis across cultures (5-Feb-24)
Autism spectrum disorder diagnosis across cultures: Are diagnoses equivalent? Link
Interview with Andre Skepple (30-Jan-24)
Listen to Andre discuss how the Autism (Early Identification) Bill by Duncan Baker MP will ensure that all autistic children receive the support they need so they can flourish as well as the technological advances he is spearheading to ensure that all children get a tailored education that will help them succeed. Link
To disclose, or not to disclose? (26-Jan-24)
Warda Farah examines four key aspects of a difficult question faced by many Neurodivergent individuals: whether or not to disclose their diagnoses at their place of work. Link
Autism and Empathy (25-Jan-24)
An Expert Discussion on Autism and Empathy Moderator: Christina Nicolaidis, Participants: Damian Milton, Noah J. Sasson, Elizabeth (Lizzy) Sheppard, and Melanie Yergeau Link
Neurodiversity in Employment (19-Jan-24)
Autistica want to work with companies that value neurodiverse teams. They have a unique research-led approach, providing high-quality information and tools to help you to recruit and support the best diverse talent. Link
Lived Experience of Autistic Adults in Employment (17-Jan-24)
The Lived Experience of Autistic Adults in Employment: A Systematic Search and Synthesis David Thorpe, Marisa McKinlay, James Richards, Kate Sang, and Mary E. Stewart Employment is a critical factor contributing to the well-being and quality of life of autistic people of working age. Historically, research has tended to focus on interventions and employment-related outcomes, typically generated without the input of autistic workers. Interventions often work to help the autistic worker fit into the working environment rather than it being adjusted for the autistic worker. However, a growing body of research reflects autistic workers' experiences of employment with consideration given to how the workplace should change to reflect the differences of this historically marginalized group. Link
Autism and Relationships (12-Jan-24)
Please take a look at 2 new resources we've added to our section on Resources & Useful Links covering Autism and Relationships. Link
Family Trauma: A Broken Care System (10-Jan-24)
The University of Kent’s Tizard Centre has been collaborating with the Challenging Behaviour Foundation, which provides support to families who have relatives with severe learning disabilities. They carried out research and explore how to navigate a broken care system. Link
What's in a name? (1-Dec-23)
What's in a name? The costs and benefits of a formal autism diagnosis by Sue Fletcher-Watson. This work presumes that a formal diagnosis is a desirable outcome – for those who meet the existing clinical criteria for what constitutes ‘autistic’. However, another key question exists, which is whether an autism diagnosis is always and entirely beneficial. Link
Access to employment: (24-Oct-23)
Study on, Access to employment: A comparison of autistic, neurodivergent and neurotypical adults’ experiences of hiring processes in the United Kingdom. Link
Podcast on Autism & Ageing (23-Oct-23)
Aging and Autism: A Discussion with Christine Jenkins, Autistic Advocate Link
Chronic physical health conditions (22-Sep-23)
Increased rates of chronic physical health conditions across all organ systems in autistic adolescents and adults. This study aims to determine, first, whether autistic people experience greater levels of non-communicable health conditions and second, whether these are explained by differences in demographics (i.e. sex, country of residence, ethnicity, education level), alcohol use, smoking, body mass index (BMI), or family history of medical conditions. Link
Eye care and autism (22-Sep-23)
How eye care professionals can improve the experience of autistic patients. Our Trustee Denise talks about how eye care can be improved. Link
Reviews of PIP and ESA Awards (7-Sep-23)
Parliament debated the petition: “End reviews of PIP and ESA awards for people with lifelong illnesses”. You can watch the debate here: Link Or you can read the transcript here: Link
Post diagnosis Podcast (5-Aug-23)
Sarah O'Brien talks about her experience post diagnosis. Learning about an autism diagnosis and making sense of what that diagnosis means personally, can feel like an overwhelming task for lots of autistic people. Link
Draft BCC Autism Strategy (4-Aug-23)
Read Buckinghamshire County Council Draft Autism Strategy Link
Maybe No One Knows We Need Help? (24-Jul-23)
"Maybe NO One Knows We Need Help?": Understanding the experiences of Autistic Working Mothers in Australia. Although there are no known studies investigating autistic working mothers, research has demonstrated that managing employment and motherhood in non-autistic populations has specific challenges, as does employment in autistic populations. This autistic-led study aimed at investigating the experience of autistic working mothers to identify benefits, challenges, and support needs. Link
Dropping the mask: It Takes two. (13-Jul-23)
In some situations, autistic people feel pressure to change their social behaviour by camouflaging. In other situations, autistic people feel they don’t need to change their social behaviour. Instead, they feel they can socialise in ways that feel authentic or true to themselves. Past research has tended to focus on autistic people’s experiences of camouflaging rather than their experiences of authenticity. In this study, we asked autistic people what it is like for them when they can socialise in ways that feel authentic or true to themselves. Link
News about PIP and ESA Reviews (7-Jul-23)
Parliament is going to debate the petition: “End reviews of PIP and ESA awards for people with lifelong illnesses”. The debate is scheduled for 4 September 2023. Link
Examining a model of anxiety in adults (19-Jun-23)
Anxiety disorders commonly occur in autism. Existing studies implicate intolerance of uncertainty, alexithymia, sensory processing differences and emotion regulation difficulties as influencing factors of anxiety in autism. To date, a few studies have considered the combination of these factors within the same sample. This study used structural equation modelling to test the prediction that intolerance of uncertainty and emotion regulation constitute more direct causes of anxiety in autism that mediate the influences of sensory processing difference and alexithymia as more sequential contributing factors. Autistic (n = 86) and non-autistic adults (n = 100) completed a battery of self-report questionnaires. Link
Interview with Terry (14-Jun-23)
Autism Bucks has just published the latest awareness video on YouTube. It's an interview with one of our members who received his diagnosis late in life, and many people will see parallels with their own experience. Link
Autistic SPACE (15-May-23)
Autistic SPACE: a novel framework for meeting the needs of autistic people in healthcare settings. Link
Using an app to contact the 999 service. (2-May-23)
Many people on the autism spectrum find talking on the phone difficult and prefer to communicate via email, text or social media. But what if you needed to call 999 in an emergency? Relay UK is a service provided by BT that allows you to use an app or textphone to make phone calls via a confidential Relay Assistant operator. The service supports calls to the UK 999 emergency services (police, ambulance, fire & rescue and coastguard) and is available for anyone who finds making a voice call difficult, including members of the autistic community. To use the app for the first time, you’ll need to set it up and link your phone number – we recommend you do it now so it’s ready to use when you need it. For more information on how the service works and to download the app for your device, visit the Relay UK website. Link
The Shifting landscape of autism (6-Mar-23)
The shifting landscape of autism services: Therapist Neurodiversity Collective’s Julie Roberts Noncompliant – the podcast a podcast about neurodiversity and human rights. Link
Transitions to Work Scheme (18-Feb-23)
Talkback and Citizens Advice Bucks are launching a new, 10 week transitions to work programme. Designed to help autistic people aged between 16 and 25 years old, who live in Buckinghamshire and can travel independently, into the world of work. Link
Recovering from trauma... (16-Feb-23)
Recovering from trauma caused by "the system" By Chrissa Cathie Long & Andy Bilson via You Tube Link
Establishing workplace adjestments (16-Feb-23)
Establishing workplace adjustments: How I learned to advocate for my Autistic needs by Justine Field Link
Why Doesn’t Standard Talking Therapy Work ..... (16-Feb-23)
Why Doesn’t Standard Talking Therapy Work for Autistic People? By Dr Alice Nicholls We know that 70% of autistic people will be diagnosed with at least one mental health problem at some point in their life. This means that autistic, neurodiverse people, and people with a diagnosis of ASD, ASC or Asperger’s syndrome are more likely to struggle with their mental health than the general population. Despite this high prevalence, most talking therapies have been designed to suit a neurotypical thinking style. Link
The Diagnosis Gap for Women & Girls with Autism (9-Feb-23)
Aged 39, Holly Smale was a successful author - the creator of the bestselling series of children’s books, Geek Girl. One afternoon, while talking to her therapist, Holly breaks down, says she feels broken. And so begins her journey to understand why she’s always felt different to other people. Listen here: Link
Autism Research (1-Feb-23)
Autism research - what's new in January 2023? by Ann Mammott PgC MA Link
Autistic Burnout (23-Jan-23)
Navigating Autistic Burnout: Self -Care strategies to recover and recalibrate Link
Autistic psychiatrists (23-Jan-23)
Autistic psychiatrists are an asset to medicine — but we need to better support them Link
Draft Mental Health Bill 2022 (23-Jan-23)
Long overdue mental health reform with the draft Mental Health BIll Link
Chat with Pete Wharmby (17-Jan-23)
As part of the Autism Bucks Awareness Programme we recently recorded a video with Pete Wharmby about four key areas of commonality in Autism. It's available on our website and here on YouTube: Link . Please take a look
Vaccinations for COVID-19 Winter Programme 2022-23 (17-Jan-23)
The Winter COVID-19 Vaccination programme continues, and BHT are running clinics for those with additional needs. Whether it is for their 1st, 2nd or a booster dose, the team would be happy to see you! For dates and times please check this poster: Link
Police Stop & Search Guide (12-Jan-23)
Met Police releases autism stop & search guide. The Metropolitan Police Service has released a guide for police officers exercising stop and search powers on autistic people, and for autistic members of public who may be subject to a stop and search. The guide, which was developed with Anna Kennedy Online and in consultation with members of the autistic community, aims to educate officers and to explain the stop and search process in simple terms. Link
Access to employment: (12-Jan-23)
New paper looking at experience of hiring processes in the UK: Access to employment: A comparison of autistic, neurodivergent and neurotypical adults’ experiences of hiring processes in the United Kingdom Link
Autism in Black Girls (29-Dec-22)
Warda highlights the experience of autism in black girls and women Link
Autism In Adulthood (29-Dec-22)
Free download on Intersectionality until 13th Jan 2023 Link
Expert by experience required. (30-Nov-22)
The Oliver McGowan Mandatory Training on Learning Disability and Autism Want a trainer workforce that is representative of all communities across England and encourage applications. ICBs and employers will soon start to recruit experts with lived experience as trainers. If you would like to be involved in this training as an expert with lived experience, please complete this expression of interest form. Link Link
Autism Assessment waiting times (24-Nov-22)
Over 100,000 waiting for an assessment in England! Link
Shaping care and support services in Buckinghamshi (20-Nov-22)
Buckinghamshire Adult Social Care’s Better Lives approach sets out a commitment to “coproduce and design services with people receiving support from Adult Social Care”.In order to progress this commitment, Adult Social Care is running a number of events to meet people who are in receipt of care and support services and carers living in Buckinghamshire over the next few months. For more information go to Link
Reflection of profound autism. (19-Nov-22)
A reflection on the use of the word “profound in relation to autistic individuals. by autisticrealms. Link
Mandatory Training (4-Nov-22)
The Oliver McGowan Mandatory Training on Learning Disability and Autism Enabling the health and social care workforce to better support people with a learning disability and autistic people. Oliver’s campaign ®Updated: 1 November 2022 Link
Ten years on.... (31-Oct-22)
The "Double empathy problem": Ten years on Link
Autism & personality disorders (19-Oct-22)
The prevalence of autism spectrum disorder traits and diagnosis in adults and young people with personality disorders: A systematic review. Link
Autism & gastrointestinal symptoms (19-Oct-22)
Global prevalence of autism spectrum disorder and its gastrointestinal symptoms: A systematic review and meta-analysis. Link
Annual Reports 2021-22 (21-Sep-22)
The Trustees Annual Report and the Financial Examiner's Report on the Charity for the financial year 2021-22 are available to view here: Link
Maxcard (11-Sep-22)
The Max Card is the UK’s leading discount card for cared for and looked after children. Families can use their Max Card at venues across the UK to get free or discounted admission. Link
Access Card (11-Sep-22)
The Access Card (sometimes referred to as the CredAbility Card or a Nimbus Card) is a card like no other; we translate your disability/impairment into symbols that highlight the barriers you face and the reasonable adjustments you might need. This then informs providers quickly and discreetly about the support you need and may gain you access to things like concessionary ticket prices and complex reasonable adjustments without having to go into loads of personal detail. Link
Mandatory Training (10-Sep-22)
Update on The Oliver McGowan Mandatory Training in Learning Disability and Autism. Link
Autism & gastrointestinal symptoms (10-Sep-22)
Global prevalence of autism spectrum disorder and its gastrointestinal symptoms: A systematic review and meta-analysis. Link
Autistic adults thrive and how they struggle (10-Sep-22)
Review, using an alternative research strategy: the team apply Martha Nussbaum’s capabilities approach, which focuses on ten core elements of a thriving human life, to research on autistic adulthood. In doing so, they identify areas where autistic adults thrive and where they often struggle, and highlight issues to which researchers, clinicians and policymakers should respond. Link
Radar Key (8-Sep-22)
The National Key Scheme (NKS) offers disabled people independent access to locked public toilets around the country. Toilets fitted with National Key Scheme (NKS) locks can now be found in shopping centres, pubs, cafés, department stores, bus and train stations and many other locations in most parts of the country. Link
Sensory Reactivity Differences. (17-Aug-22)
The Perceived Causal Relations Between Sensory Reactivity Differences and Anxiety Symptoms in Autistic Adults. Article on the link between sensory overwhelm / pain and anxiety for autistic people. Link
Autism: Some Vital Research Links. (24-Jul-22)
Thanks to Ann Memmott for agreeing for to share her blog “Autism: Some Vital Research ” Link
Shortages of Personal Asssistants (21-Jul-22)
Council pay limits leading to ‘severe shortages’ of personal assistants. Link
Building the Right Support Action Plan (16-Jul-22)
Better care for people with a learning disability and people with autism Government’s 'Building the Right Support Action Plan’ combines work across government and public services so people can live independently in their community. Link
Understand how Routines can help Autistic People (14-Jul-22)
Routines are often seen as important for autistic people. This is true for many of us, but there are dangers to assuming autistic people need routines, without understanding why. Routines imposed by other people are likely to do more harm than good. Link
Eating Disorders more common in Autism (13-Jul-22)
People with traits of autism are more likely to have eating disorders, a new study shows. Link
Relationship between masking & wellbeing (2-Jul-22)
Brief Report: Does Autistic Community Connectedness Moderate the Relationship Between Masking and Wellbeing? Link
This Was Just How This Friendship Worked (25-Jun-22)
“This Was Just How This Friendship Worked”: Experiences of Interpersonal Victimization Among Autistic Adults. Link
Dental care for autistic children (25-Jun-22)
Factors influencing oral health behaviours, access and delivery of dental care for autistic children and adolescents: A mixed-methods systematic review. Link
Autistic Perspectives (25-Jun-22)
Autistic Perspectives on the Future of Clinical Autism Research. Link
Time to rethink autism research (18-Jun-22)
Measuring the Wrong Thing the Right Way? Time to Rethink Autism Research Tools. Sandra Jones Link
The Elgiva Theatre in Chesham (16-Jun-22)
A couple of our members recently went to The Elgiva Theatre in Chesham to watch the film Operation Mincemeat and have reported back that they believe our other members will enjoy it too. Aside from the occasional annoyance (rustling sweet papers, people getting out of their seats half way through), they found the experience to be autism-firendly and would like to encourage others to try it out. The list of forthcoming attractions can be found here: Link
Mandatory Training (31-May-22)
The Oliver McGowan Mandatory Training in Learning Disability and Autism. Link
Monotropism (31-May-22)
Monotropism is a theory of autism developed by autistic people, initially by Dinah Murray and Wenn Lawson. Link
Grieving while autistic (30-May-22)
Interesting blog about grieving by Jess Hudgns Content note: This essay discusses death, disordered eating, and suicidality. Link
DSM-5 Update (30-May-22)
Updated in the new DSM-5-TR Link
Adolescents’ engagement in online gaming (30-May-22)
‘I can actually do it without any help or someone watching over me all the time and giving me constant instruction’: Autistic adolescent boys’ perspectives on engagement in online video gaming”. Link
Shining a Light on a Hidden Population (25-May-22)
Shining a Light on a Hidden Population: Social Functioning and Mental Health in Women Reporting Autistic Traits But Lacking Diagnosis. Link
Autistic Burnout (23-May-22)
Autistic burnout is a term widely used by members of the autistic community to describe their experience. But what exactly does it mean? Link
Perspectives of autistic adults (23-May-22)
Perspectives of autistic adults on the strategies that help or hinder successful conversations. Link
Large unemployment gap (19-May-22)
. large unemployment gap despite of above-average education in adults with ASD without intellectual disability in Germany: a cross-sectional study. Link
Autism, Movement and Motor Planning (19-May-22)
Autism and dyspraxia. Link
Somalis build acceptance (19-May-22)
The Somali language hasn’t included a word for “autism.” Parents say that omission plays into community stigma and misunderstanding. A recent social media post from the Somali musician Aar Maanta highlighted efforts from Somalis in Minnesota to create positive language to identify autism. Link
We Need Better Diagnostic Tests for Women (28-Apr-22)
We Need Better Diagnostic Tests for Autism in Women by Zhara Astra. Link
Autistic Masking (28-Apr-22)
A Conceptual Analysis of Autistic Masking: Understanding the Narrative of Stigma and the Illusion of Choice Link
Study suggests early self-awareness of autism .... (28-Apr-22)
Study suggests early self-awareness of autism leads to better quality of life Link
Covid 19 and Mental Health (23-Apr-22)
Mental health of autistic adults during early stages of Covid -19. By Rebecca Bundy and Laura Crane. Link
SENsory Astronights (21-Apr-22)
SENsory Astronights is an overnight event for families with members who benefit from a more relaxed museum atmosphere. Experience all the excitement of our Astronights in a more calm and free-flowing environment. Next event is Saturday 6 Aug. Book here: Link
NAT update (18-Apr-22)
National Autistic Taskforce (NAT) update on activities -January 2022 (published 7th April2022) Link
Double Empathy: (13-Apr-22)
Double Empathy: Why Autistic People Are Often Misunderstood. Autism affects how someone makes sense of the world around them. About 1–2% of people are autistic. You might have an autistic classmate or family member, or maybe you are autistic. Autistic people might communicate differently than people who are not autistic. This means that it can be difficult for other people to understand what autistic people are trying to say or what they mean. Link
Exploring Employment Event (10-Apr-22)
Autism Wales -really helpful information aimed to provide practical tips surrounding the following topics: Communicating your needs to your employer Understanding your employment rights and responsibilities Managing your mental health and wellbeing at work Flexible working Interviews Identifying your skills and interests and a job or career that is meaningful for you. In doing so it hoped to empower Autistic people not only to find the right job for them, but to maintain a long and meaningful career. The event was recorded and is available to view here Link
COVID-19 vaccination clinic (9-Apr-22)
COVID vaccination clinic for people with a learning disability or who are autistic aged 5 + at Amersham Hospital. Sunday 15th May 9:30 – 4pm Call 01296 316991 or email bht.covidvaccineteam@nhs.net. To book, use this Link
Post-traumatic stress disorder in autistic people. (3-Apr-22)
Post-traumatic stress disorder in autistic people By Dr Freya Rumball. Dr Freya Rumball is an autism researcher at King�s College London and a highly specialist clinical psychologist working within Oxleas NHS Foundation Trust Adult Autism Assessment Service and Autism Partnership Programme. Here Dr Rumball discusses research exploring autistic people�s experience of trauma and post-traumatic stress disorder, and what support may help them. Link
Adaptive Morphing and Coping……… (3-Apr-22)
Adaptive Morphing and Coping with Social Threat in Autism: An Autistic Perspective. By Wenn Lawson. his paper highlights the role of terminology, such as camouflage and masking, commonly used in autism rese arch. The author suggests researchers question assumptions around language commonly used to check it is fully representative of the autistic position. Link
Ageing and Autism: A BIG conversation (1-Apr-22)
NDTi (National Development Team for Inclusion) have created a space for older autistic people to share their worries and hopes. Join the conversation. Link
Autistic Girls Network (1-Apr-22)
"Autism, Girls and Keeping It All Inside" The autistic girls network have launched a white paper on the an internal presentation of autism and why it's often missed. Link
Mental Health Group for Men (30-Mar-22)
Talkback is starting a men�s mental health group at the end of April and has an advice bureau for people with learning disabilities or who are autistic. More information can be found here Link and here Link
Learning disability and Autism training (23-Mar-22)
Members of the House of Lords have passed an amendment to the Health and Care Bill to enshrine mandatory training for health and care staff on learning disabilities and autism in law.. Link
Research with autistic adults on lived experiences (23-Mar-22)
�We couldn�t think in the box if we tried. We can�t even find the damn box�: A qualitative study of the lived experiences of autistic adults and relatives of autistic adults. Tracy L. Finch ,Joan Mackintosh ,Alex Petrou ,Helen McConachie ,Ann Le Couteur, Deborah Garland, Jeremy R. Parr Published: March 14, 2022 Link
Autism training for police custody staff (17-Mar-22)
A pilot study of co-produced autism training for police custody staff: evaluating the impact on perceived knowledge change and behaviour intentions Chloe Holloway, Nell Munro, Kleio Cossburn, Danielle Ropar . Link
Post diagnostic Peer Support in Adulthood (13-Mar-22)
�A Group of Fellow Travellers Who Understand�: Interviews With Autistic People About Post-diagnostic Peer Support in Adulthood. Receiving a diagnosis of autism in adulthood can be a life changing event, impacting identity, relationships, and mental health. A lack of post-diagnostic support has been highlighted by autistic adults, their allies, clinicians, and service providers. It can be a source of distress for autistic adults, reinforcing feelings of social isolation and rejection. Peer support could be a cost-effective, flexible, and sustainable model to provide community-based support for autistic adults. Link
Understanding Neurodiversity At Work (13-Mar-22)
Neurodiversity at work is a strand of organizational diversity that currently attracts well deserved attention. Put simply neurodiversity provides a competitive advantage in innovation and adaptability to the changing world and reduces risk. Neurodiversity encompasses neurological differences such as Dyslexia, Dyspraxia, ADHD and Autism Spectrum Conditions. It�s main tenet is that neurological diversity is an internal part of the diversity of human talent and should be protected and promoted Neurodivergent people have brains that are wired differently and as the result they literally think differently, approach issues from a different perspective resulting in innovative, creative solutions to complex problems, understanding of hidden trends and patterns that lead to new and improved processes, products and services. Wed, 6 April 2022 13:00 � 14:30 BST free online . Link
Bucks Heroes Project (10-Mar-22)
Bucks Heroes Project wants to collaborate with local communities to celebrate and explore their extraordinary stories and heritage, which are currently under-represented at the Museum. Read more here: Link(opens in a new tab)
Autism - A Guide for Parents (8-Mar-22)
This booklet has been co-produced by a team of practitioners with lived experience of autism, dyspraxia, ADHD and dyslexia. It includes professional input from health and social care management, education and speech and language therapy, the latter informed by the principles of Sensory Attachment Intervention. Read it here: Link
COVID Jabs (8-Mar-22)
On Sunday 20th March, Buckinghamshire Healthcare NHS Trust are opening a special COVID jab clinic for Buckinghamshire people (aged 5 upwards) who have a learning disability or are autistic and their family members. See more here: Link
Summary of some changes to the DSM-5 (7-Mar-22)
Interview with Dr. Michael B. First. editor and co-chair of the American Psychiatric Associations� DSM-5 Text revision, coming out March 2022. : What are the differences between a full update and a text revision? What changes have been made (and how were these changes decided)? What new diagnoses can we expect? Can clinicians continue to use the older DSM-5? How can clinicians advocate for changes in future versions of the DSM? Link
Older Person Accompanied walks (7-Mar-22)
Accompanied Walks Are you 65 years or older? Might you need a change of scene? Do you like the fresh air? Would you enjoy a chat and a cuppa? an Accompanied Walk and a cuppa at Chiltern Open Air Museum, set in 45 beautiful acres of gardens, park and woodland. You will be joined by a friendly Volunteer to keep you company and show you around. You may bring a carer or companion and even your dog if you have one! Link
Accompanied Walks at COAM (7-Mar-22)
Are you an autistic young person (16-26 yrs old)? Or do you care for a young adult with autism/ASD? Would you like a change of scene in the fresh air? Would you enjoy a chat and a cuppa? Are you an autistic young person (16-26 yrs old)? Or do you care for a young adult with autism/ASD? Would you like a change of scene in the fresh air? Link Link
Traumatic life experiences of autistic adults (4-Mar-22)
Traumatic life experiences and post-traumatic stress symptoms in middle-aged and older adults with and without autistic traits. Almost 30% ( compared to less than 8% non autistic) reported severe trauma in childhood/adulthood. Link
Free Autism Conference (3-Mar-22)
March 17th Free online Autism's Double Empathy Problems Conference by University of Portsmouth. Link
Receiving support for mental health difficulties. (17-Feb-22)
�We Have to Try to Find a Way, a Clinical Bridge�� � autistic adults� experience of accessing and receiving support for mental health difficulties: A systematic review and thematic meta-synthesis. Free access for 50 days. Link
Autistic psychiatrists bring strengths and value.. (15-Feb-22)
Autistic psychiatrists bring strengths and value to the workforce and ask to be acknowledged and supported as part of the Royal College of Psychiatrists CIRCLE value and Equality Action Plain. Link
Disability benefits assessments debated by MPs (3-Feb-22)
MPs debated disability benefits assessments on Tuesday 1 February in Westminster Hall. The debate was led by Marsha De Cordova MP. Read a transcript of the debate: Link Watch the debate: Link
Autistic Adults� Experiences of Camouflaging�� (31-Jan-22)
Autistic Adults� Experiences of Camouflaging and Its Perceived Impact on Mental Health. Link
The impact of early stages of COVID-19 (31-Jan-22)
The impact of early stages of COVID-19 on the mental health of autistic adults in the United Kingdom: A longitudinal mixed-methods study Link
Tate Modern visual story. (31-Jan-22)
Tate Modern visual story A step-by-step visual and written guide to help you plan your visit Before you visit Tate Modern you need to book a ticket. Link
Characterizing autistic traits�. (28-Jan-22)
Characterizing autistic traits in treatment-seeking young adults with substance use disorders. Link
Considering autistic patients in telemedicine (27-Jan-22)
Considering autistic patients in the era of telemedicine: the need for an adaptable, equitable, and compassionate approach. Link
March in March for Autism Bucks (25-Jan-22)
To help raise money for our charity, we are inviting everyone to undertake some form of �sponsored exercise� in March. More information can be found in our Journal section here: Link
Become a Trustee With Us (22-Jan-22)
We are looking for Trustees to join our Board Autism Bucks is a small Charity but growing fast. Our goal is to raise awareness of Autism so that Autistic people are fully-accepted in their community, and able to thrive and achieve. We are seeking to appoint 2-3 new Trustees to join our existing Board. We welcome applications from people with different backgrounds, life experiences and career paths. We would particularly welcome applications from anyone who has had a direct experience of Autism, either personally or as a career for an Autistic person. Autism Bucks has no employees, so all the Trustees play a very hands-on role when it comes to supporting our Members. A typical Trustee should be: - Reliable - Ready to give up their time without recompense - Empathetic, with a reasonable understanding of Autism and Autistic People - Willing to undergo a DBS check and provide references - Over 16, other than exceptional circumstances. Special consideration will be given to people with: - A background in healthcare and support, especially neurodiversity - Special skills or interests that could be shared with the Members. The minimum commitment would be attendance (online) at our monthly Trustee meetings, although we would hope that your passion for supporting Autistic people would inspire you to do more. If you are interested, please send an email to Send email.
Free �Understanding Autism� course. (19-Jan-22)
Join 300,000 people who have undertaken 6 week free �Understanding Autism� course. Starts 24th Jan 2022. Link
Covid Jabs at Stoke Mandeville Hospital (17-Jan-22)
Buckinghamshire Healthcare NHS Trust is opening a special COVID jab clinic for Buckinghamshire people who have a learning disability, or are Autistic, and their family members. More information here: Link
Relaxed opening Tower Bridge (14-Jan-22)
Perfect for people who prefer quieter spaces, such as those with autism, Aspergers and anxiety, as well as their siblings, families and carers. Link
Sensory Trauma (4-Jan-22)
(PDF) Sensory Trauma � autism sensory difference and daily experience of fear by Rorie Fulton, Kate Richardson. Dr Rachel Jones and Emma Reardon. Link
Petition � PIP and ESA Reviews (30-Dec-21)
Currently people with affirmed lifelong illnesses are still required to have their Personal Independence Payment (PIP) or Employment and Support Allowance (ESA) awards reveiwed evry couple of years. If you believe this is unfair pleaase consider signing the petition at Link
Absolutely Together (22-Dec-21)
Absolutely Together aims to put smiles on the faces of families who have children or young adults with additional needs. All family leisure time should be something that is cherished, but for many, it can be an incredibly stressful time.​ Absolutely Together helps these families by providing free access to exciting activities in the communities we work in. We have added them to our list of Resources: Link
Autism Peer Support Workers (18-Dec-21)
Capabilities for Autism Peer Support Workers Online workshops. Autism Peer Support is support for autistic people by autistic people, and aims to improve the quality of community-based support for autistic people. Link
The importance of home: (18-Dec-21)
The importance of home: Satisfaction with accommodation, neighborhood, and life in adults with autism.. Anke M. Scheeren, Patricia Howlin, Meike Bartels, Lydia Krabbendam,Sander Begeer. Interesting study on housing for autistic adults & quality of life. Link
The CDC stats 1 in 44 people are autistic (16-Dec-21)
New CDC stats say that 1 in 44 people are autistic, but this is calculated on 8 years. The true figure must be higher due to lots people not being diagnosed or being diagnosed later. Link
Network Rail autism friendly guide to travel (12-Dec-21)
Network Rail has produced a guide to help autistic people confidently and independently travel by train. It’s been developed in partnership with the National Autistic Society, after research was conducted with groups that represent passengers with specific needs, to look into additional ways the railway could be made more accessible for everyone. Link
Reasonable adjustments in a healthcare (11-Dec-21)
Excellent article on making reasonable adjustment in healthcare by Clair Haydon, Mary Doherty, Ian A Davisson. Link
Helpful tips for Christmas (9-Dec-21)
PDA Society have helpful tips for making Christmas less overwhelming for autistic people. Link
Identification and assessment of autism in adults (9-Dec-21)
Guidance for GP�s on identification and assessment of autism in adults. Link
National Autistic Taskforce Forum (8-Dec-21)
Clips now available from the National Autistic Taskforce Forum held in September 2021 Link
National Paralympic Heritage Centre (3-Dec-21)
The Heritage Centre is located inside the Stoke Mandeville Stadium and is free to visit. There is more information to read in our journal section.Link
Autism in black, Asian and minority ethnic groups. (3-Dec-21)
Autism in black, Asian and minority ethnic communities: a report on the first Autism Voice UK Symposium. By Mariama Seray Kandeh, Mariama Korrca Kandeh, Nicola Martin and Joanna Krupa Link
Oliver McGowan Mandatory Training (3-Dec-21)
Evaluation of the Oliver McGowan Mandatory Training in Learning Disabilities and Autism � An Interim Report Link
Easy Read Flu Jab (2-Dec-21)
Protect yourself from flu easy read Link
Menstruation and menopause in autistic adults (1-Dec-21)
New research on autism & menopause. with free access �Menstruation and menopause in autistic adults: Periods of importance?� Link
NHS Easy Read Newsletter (29-Nov-21)
NHS Learning disability and autism newsletter: Issue 13 Link
The Oliver McGowan Mandatory Training (26-Nov-21)
The Oliver McGowan Mandatory Training in Learning Disability and Autism. What is The Oliver McGowan Mandatory Training in Learning Disabilities and Autism? Link
The Strengths of Autistic People in the Workplace (26-Nov-21)
The Strengths and Abilities of Autistic People in the Workplace. Link
Late diagnosis in females (21-Nov-21)
People said I was weak, lazy and fussy. I’m not – but I am autistic, read one person�s story. Link
Tuesday 23rd Nov Autism and Exposure Anxiety (20-Nov-21)
Free Workshop: Paul Isaacs, Autism Advocate, Speaker, Trainer and Consultant on Tuesday 23rd November to learn more about Autism and Exposure Anxiety. Link
Diagnosis is rebirth (20-Nov-21)
‘Diagnosis is rebirth’: women who found out they were autistic as adults. Link
House of Commons debate. (18-Nov-21)
House of Commons debate calls for more funding for autism support. Link
New post-diagnosis support plan (17-Nov-21)
Autistica publishes new post-diagnosis support plan. Too many autistic people are abandoned after diagnosis with zero effective support. Autistica have published the Autistica Support Plan, the first step in achieving their visionary and ambitious 2030 Goals. Link
Free Social Story (17-Nov-21)
Free �Going to the Doctor� social story. Link
Teenage Health support (17-Nov-21)
Looking after your health for autistic teenagers. Link
Autistic researchers looking for looking Autists (16-Nov-21)
Glasgow Uni Autistic researchers are looking for older Autists to fill in a questionnaire. Link
Autism Through Cinema. (15-Nov-21)
Fortnightly podcast episodes exploring the representation, presence and expression of autism in popular and underground cinema and TV. Link
Experiences of Autism Acceptance and Mental Health (8-Nov-21)
Mental health difficulties are highly prevalent in individuals on the autism spectrum. Link
Support surrounding diagnosis (7-Nov-21)
Westminster Commission on Autism report on support surrounding a diagnosis. Link
Toolkit for employers (5-Nov-21)
Ambitious about Autism have developed a helpful toolkit for employers. Transition into employment. Link
Engaging in participatory autism research. (5-Nov-21)
Six steps to engaging in participatory autism research. By Rachel Zamzow. Link
Wait for a autism diagnosis. (5-Nov-21)
GMB investigation into the wait for an autism diagnosis. Link
Play at Home- free download. (3-Nov-21)
Great resources for at home & school, free download. Supports development of communication, social and emotional wellbeing. Link
Group Meeting Dates (2-Nov-21)
Wed 10 Nov (11am � 12pm) � Zoom meeting Wed 24 Nov (6.30pm � 8pm) � Face to Face (Aylesbury) & Zoom, Wed 8 Dec (11am � 12pm) � Zoom meeting Wed 15 Dec (6.30pm � 9pm) � Christmas buffet Aylesbury Face to face & Zoom. For details complete our membership form: Link
Relaxed Christmas Grotto. (1-Nov-21)
Bletchley Park are offering a relaxed Christmas Grotto 28th November 2021 booking required Link
Independent and Work Ready (30-Oct-21)
Independent and Work Ready CIC is a non-for-profit organisation that offer virtualwork experience involving creativity, product design placements to participantswith disabilities/SEND/chronic health issues. Currenly offering some funded placesfor all ages in Buckinghamshire as we develop our online programe of supportedemployment. Link
Halloween Tips for Autistic Children. (29-Oct-21)
Anne Kennedy halloween tip for autistic children. Link
Westminster Commission on Autism Report. (26-Oct-21)
Westminster Commission on Autism � Support Surrounding Diagnosis: An Inquiry into Pre- and Post- Support for the Autism Diagnosis Pathway. Will be hosting a Zoom launch event on Tuesday 2nd November 13:00-15:00, for discussion of the Commission�s report �Support Surrounding Diagnosis: An inquiry into pre- and post- support for the Autism Diagnosis Pathway.�. To book your place Link
Paid work experience for autism job seeker. (25-Oct-21)
Are you an autistic job seeker and looking for work experience in engineering sector? Closing date 31st Oct 2021 Link
Sharing your autism diagnosis with an employer. (25-Oct-21)
Workshop for neurodivergent adults on how to share their diagnosis with an employer online event 28th Oct cost £12-35. Link
Huge autism spectrum condition study suspended. (25-Oct-21)
A large, UK-based study of genetics and autism spectrum disorder (ASD) has been paused, following criticism that it failed to properly consult the autism community about the goals of the research. Concerns about the study include fears that its data could potentially be misused by other researchers seeking to ‘cure’ or eradicate ASD. Link
Selective Mutism and Autism. (23-Oct-21)
Selective Mutism and Autism: Is My Child Mute or Autistic? Link
Identity Theory of Autism (20-Oct-21)
How autistic identity is experienced differently by Terra Vance. Link
Oliver McGowan Mandatory Training. (20-Oct-21)
This training trial is for health and social care staff in England. It will make a huge difference to people with a learning disability and autistic people in accessing the help they need from the NHS and social care in a way that meets their needs effectively. Link
Annual Pantomime at the Curzon Centre in Beaconsfield (18-Oct-21)
The Young Theatre performs its annual pantomime at the Curzon Centre in Beaconsfield and is doing a relaxed performance this December. Tickets are not yet on public sale as they would like to give Autism Bucks members the opportunity to book first. Link
Autism, stress and the low-arousal approach (17-Oct-21)
This presentation looks at autism through autistic-led theories such as monotropism and the double empathy problem to examine responses to stress. Link
Milton’s ‘double empathy Problem (15-Oct-21)
Milton’s ‘double empathy problem’: A summary for non-academics. By Dr Melanie Heyworth. Link
Building Super Highways. (14-Oct-21)
Dr Dinah Murrays blog on monotropism theory of autism �Building Super-Highway- Why Monotropism Works for Autistics�. Link
Visual perception in autism. (13-Oct-21)
Paul Isaacs, an autism consultant and trainer, explores visual perception in autism, focusing on object, meaning and face blindness. Paul, an autistic adult and author of several books, also discusses the �fruit salad� analogy of autism. Link
�Something needs to change�. (11-Oct-21)
Mental health experience of young autistic adults in England. Link
The Impact of Sleep Quality. (10-Oct-21)
This study looks at the impact of sleep quality on the life of autistic adults. Link
Guidance for Justice Professionals (6-Oct-21)
Assisting People with Autism: Guidance for Justice Professionals in communicating with people with autism. Link
The right benefits first time around (4-Oct-21)
Disabled people are being repeatedly failed by stressful and degrading benefits assessments and appeals. It shouldn’t be a fight. In the current system, there’s no way to make sure you’ll get an assessor who understands your condition. And the wrong assessor can lead to the wrong decision. Sign the petition to the Secretary of State for Work and Pensions. Call for disabled people to have the right to an appropriate assessor. Link
National Paralympic Heritage Center (1-Oct-21)
National Paralympic Heritage Centre visits has a new resource to help plan a visit. The material includes a pre-visit social story/photo trail and a sensory map. Link
Autistic Burnout (30-Sep-21)
Autistic burnout explained by SARAH DEWEERDT Link
What is Autistic Burnout? (30-Sep-21)
�What is autistic burnout?� Thematic analysis by Jane Mantzalas & colleagues. Link
Number diagnosed with autism jump. (29-Sep-21)
The number of people diagnosed with autism has jumped by 787 per cent in the past two decades, a new study shows, likely an effect of increasing recognition. The exponential increase � between 1998 and 2018 � was greater for females than males, with the greatest rises among adults. Researchers compared the rates of autism recorded in GP records in England, covering over 9 million patients from GP practices. Link
Dating while autistic (29-Sep-21)
Dating while autistic: romance isn’t easy when you miss the social cues – and the red flags By Kay Kerr. Link
Free autism session for professionals. (27-Sep-21)
Free autism session for professionals will give a more in-depth understanding of working with autistic individuals. The sessions will take place via Teams: Link
Flexible working from day one (27-Sep-21)
The Department for Business, Energy & Industrial Strategy today announced a consultation allowing employees to request flexible working from their first day. Previously employees had to be in the role for six months before they were entitled to ask for this. Link
New study shows differences per age of autism diagnosis. (27-Sep-21)
Autism Through the Ages: A Mixed Methods Approach to Understanding How Age and Age of Diagnosis Affect Quality of Life. Link
Free Training: Communicating Effectively. (23-Sep-21)
Free online course with University of Kent. Communicating Effectively with Vulnerable Children and Young People. Discover tools and techniques to engage effectively with vulnerable children and young people. Link
Exploring interpersonal and environmental factors of autistic adolescents’ peer engagement in integrated education. (23-Sep-21)
Research Article by Yu-Lun Chen, Maxwell Schneider, Kristie Patten. Exploring interpersonal and environmental factors of autistic adolescents’ peer engagement in integrated education. Link
Skills for Care have a new framework for commissioners who work in social care, health, education and children’s services. (23-Sep-21)
The new framework for commissioning services for autistic people, to help them to make informed commissioning decisions and improve the outcomes for autistic people and their families. Check out our National Strategy and Guidance page.
What is masking (22-Sep-21)
Masking is a social skill that persons with autism adopt in social settings in which non-autistic people expect non-autistic behavior. Link
Positives of Autism (22-Sep-21)
Seeing autism as a positive: Link
Heart & Soul � The Beautiful Oct (19-Sep-21)
The Beautiful Octopus Club returns via zoom. Link
New Research (19-Sep-21)
New research highlights the quality of life and mental health issues of adults with autism. Link
Group meeting (face to face) (16-Sep-21)
Our next adult group meeting is Wednesday 22nd September 6.30pm -8 pm in Aylesbury . Visit our contact page to gain more details.
Autistic lawyer landed his dream job. (15-Sep-21)
Property lawyer Martin Whitehorn says the legal profession is opening up to more neurodiverse talent. Read the guardian article: Link
Sexual Health Week 2021 (15-Sep-21)
This week is sexual health week and My Life My Choice and their Young Champions have created 3 easy -read resources. Link
Autism and Cinema (14-Sep-21)
A new film season explores the relationship between autism and cinema. The Barbican’s programme includes a diverse selection of work that puts neurodiverse voices front and centre. Link
Autism DNA study on hold (13-Sep-21)
How can employers adjust their recruitment for people with autism? (13-Sep-21)
Petite Ponies (12-Sep-21)
Those of you interested in horses may like to take a look at an organisation that contacted us recently called Petite Ponies (Link). They offer a wide range of tailored sessions and activities depending on your personal, family, students, team or clients needs. You can read more about them in the Resources section.
Read Autism in Adults BY: Luke B (1-Sep-21)
Free download Luke Beardon Book. Above all, this book is a celebration of what it means to be autistic � of the passion, honesty, humor, lack of ego, loyalty and trustworthiness that make you. Download
Our next face to face adult group (1-Sep-21)
Our next adult group will be Wednesday 22nd September 2021 6.30-8pm in Aylesbury. To join as a Member please select [Become a Member] button on our website.
ASD Museum Poster Project (28-Aug-21)
It was great to see our Members who turned up for the Group Meeting in Aylesbury on 25th Aug. We were joined by artist Daniel Riley who asked us all for ideas that he will use to create a poster about Autism and the challenges that Autistic people face when visiting museums. Daniel will visit again in September to share what he has produced so far so that he can get your feedback and consultation on the progress of the poster.
Understanding Autism Poster (28-Aug-21)
Autism Bucks has developed a poster that has been sent to all supermarkets in the Bucks area. Take a look: Click here
New Website (28-Aug-21)
If you�re reading this then you�ve found our new website � welcome. This is just the start. Over the next few months we�ll be adding a members area, chatroom, blogs and much more. So please keep coming back and, if you�re minded to do so, please use the buttons to share our site on Twitter, Facebook and Pinterest. We are always open to suggestions. Please use from the menu to pass on your ideas.